|International Space Station STS-127 Wikimedia|
Where are the Voyagers Now?
- provides a space devoted to the conceptual framework known as Hodges' model. A potential resource within HEALTH, SOCIAL CARE, INFORMATICS and EDUCATION the model incorporates two axes: individual-group and humanistic-group with four care (knowledge) domains - Sciences, Interpersonal, Political and Social. Follow the development of a new website using Drupal as I commence post graduate distance-learning studies in January 2014. See our bibliography, archive and please do get in touch. Welcome.
|International Space Station STS-127 Wikimedia|
Call for Articles for a Special Section of Semiotica, the Journal of the International Association for Semiotic Studies on the theme of “Social Representations, ICTs and Community Empowerment”.
This special section will provide an overview of the use of Social Representations Theory (SRT) (Moscovici, 1961), for empowering local communities, with a specific focus on the role of Information and Communication Technologies (ICTs), such as the Internet, desktop and mobile devices, radios, etc.
Interested researchers are invited to submit an abstract proposal (word file) of about 500 words via e-mail.
Abstracts should be accompanied by the following information about each of the authors:
When time permits I will try to identify some of the dimensions of inequality against Hodges' model. In the meantime:
Some of you may know about the research I and colleagues around the world have been pursuing on the new health-related domains published in the Lancet, JMIR, Globalization and Health, and featured by news outlets such as NPR, Kaiser Health News, the CBC, and others. Right now we have the unique opportunity to make an impact by demanding that that public health interests are a priority in the future of the Internet.
Currently, about a dozen health-related generic top level domains (gTLDs) are being added to the Internet. They include domains such as .healthcare, .med, .doctor, .clinic and MOST IMPORTANTLY a new .health. Unfortunately, ICANN is now in the process of awarding this hugely important domain space that could shape the very future of health information online to a company that has no interest nor expertise in public health. Basically, ICANN has ignored key stakeholders including the World Health Organization, World Medical Association, Save the Children, IMIA, France, Mali, and others who have expressed great concern about ICANN’s treatment of the .health. This recently ended in a secret and private settlement to award the .health that was scheduled to go to a public bidding process.
This decision is important as it will impact global public health and the health of individual consumers. As people increasingly use the Internet for health information and use that information to make crucial treatment decisions, the quality and trustworthiness of health information online has never been more important. A .health that was properly governed, had sufficient participation from the medical and public health community, and that was structured as a global public good for the broader community, could have been a game changer for ensuing the reliability of health information online and improving health outcomes. This has not happened, as ICANN has focused on economic and commercial interests over public health.
What you can do
We are now engaged in a last ditch push to make a real difference here and we have an opportunity to do so. Right now ICANN is having their annual meeting in Los Angeles. After discussions with friends at WHO, other academics, and even those sympathetic to our cause within ICANN, we’ve learned that only the broader public health and medical community can make a difference. For this reason, I am hoping you will join our coalition in letting ICANN know that the concerns of the public health community for the .health need to be addressed immediately.
You can make a difference by directly engaging in ICANN’s policy processes via an online public forum this THURSDAY, OCTOBER 16 - 14:00-17:00PM PDT. Participation is easy and will not take much of your time:
All you have to do is visit the following URL (http://la51.icann.org/en/schedule/thu-public-forum), and then click the “Virtual Meeting Room Stream Live” link, click the option to participate as a guest, and you will be entered into an adobe connect chat room where you can participate and voice your concerns. Some of the concerns that could be addressed are:
- why has ICANN ignored calls by the WHO, World Medical Association, France, Mali, and others about the .health
- why did ICANN award the .health with no transparency through a secret settlement?
- why has ICANN not responded to multiple letters sent to their board about the .health asking for a moratorium/suspension of the process?
- why does ICANN treat other domains such as .wtf, .sucks, with better safeguards than the .health?
- why has ICANN not listened to the public health community about the .health and other health-related domains?
- health is such an important issue, shouldn’t we have a place on the Internet where we can trust our health information?
I will be personally attending the ICANN meeting in LA and meeting with certain key ICANN officials to try to make an impact. Please join us so that we can ensure the .health is a place to improve your health, not harm it.
If you have any questions feel free to contact me at anytime attmackey AT ucsd.edu. Only with your help can we hope to make a difference.
References and Sources
The vertical axis of Hodges' model is the individual - group, or self through to collective. Health and social care constantly negotiates this from the ideals and delivery of person-centred care to public mental health. So often for health professionals the emphasis is on the individual, the person's care needs, their strengths, their rights, outcomes and feedback on care received. The same individual focus is also ascribed to records and information. Protection of data, maintaining confidentiality is an essential duty of health care professionals.
Earlier this year the government's care.data scheme was placed on hold. 'Open' is the way of the world: open access, open source, open data and open government. Increasingly the group as an entity needs to considered in what may be a new way, as Floridi writes:
The idea that groups may have a right to privacy is not new, and it is open to debate, but it has not yet received all the attention it deserves, although it is becoming increasingly important.
Open data is more likely to treat types (of customers, users, citizens, demographics population, etc.) rather than tokens (you, Alice, me), and hence groups rather than individuals. But re-identifiable groups are ipso facto targetable groups.It is therefore a very dangerous fallacy to think that, if we protect personal data that identify individuals, the protection of the groups will take care of itself. p.23.
|Who?||Kill the Moon|
As noted previously on W2tQ the significance of information practically and as a concept is very obvious in health and social care. Not just the debate about assuring privacy and confidentiality of clinical records and professional disclosure, but the meaning of information to an individual. This is assuming that the person concerned has the mental capacity to recognise what a particular circumstance, event, item of news means; and not just this morning, but tomorrow...
A diagnosis, lab result, a date for this procedure or that operation all can be a major source of anxiety and stress.
This week's visit to Amsterdam also included a visit to the Stedelijk Museum, where I saw Jobstijding (Bad Tidings), 1932 / Carel Willink (1900-1983). On Saturday I marvelled at Vermeer's The Love Letter and many other great works at the Rijksmuseum. ...
Through art and these works in particular we can contrast the social impact of information, of news - its meaning past and present with our ongoing preoccupation with binary representation and the information age.
Snail mail may be less common and yet the impact of decisions, news, life events ... remains.
Dear ERCIM News Reader,
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I arrived in Amsterdam last night and spent today, 8 hours in the Rijksmuseum. It is an amazing experience, even to just scratch the surface. Early on it was not busy! Entering the building, is as publicised, to discover a remarkable series of spaces.
There are so many highlights of a rewarding day. One must be within the final hour 1610 finding one of Van Gogh's self portraits. Van Gogh finds himself placed in the interpersonal domain not just by virtue of this self portrait, but his struggle with mental health and hospitalisations.
|Samuel Dirksz van Hoogstraten [Public domain], via Wikimedia Commons|
In June Dr Mayumi Hayashi described Japan's vision of 'total care' for its older population in HSJ. The article that prompts this post follows another with lessons for England.
Referring to a "2025 vision" this forward thinking has its roots in established systems of healthcare set up in 1961 and social care established in 2000 (p.25).
|embedding supported living programmes and dementia friendly community initiatives||integration of health and social care|
"late life specific" housing needs
(integration of health and social care)
promoting policies for prevention and outreach, together with safeguarding
In the previous post I highlighted "Holistic approaches to learning are agnostic as to method."
I added that there would be more to follow as Hodges' model can be viewed as agnostic on several levels. The following is taken from a paper on Hodges' model and its application in forensic nursing:
Hodges’ model claims to be person-centred and situated (Jones, 2008). What exactly does this mean for forensic nursing? The utility of Hodges’ model lies in it being agnostic. By ‘agnostic’ this means that the model is not dependent upon, dedicated to, sanctioned by, or owned by any particular discipline (even nursing). It was not designed with a particular media, clinical setting, situation or organization in mind. It is true, however, that the model was formulated within academia and health and social care, being taught and applied by community mental health nurses, learning disability and health visiting students. Apart from the history and universality of the model’s cruciform structure and its inherent 2 x 2 matrix form [often referred to as a Johari window (Luft and Ingham, 1955)], the model is also culturally neutral. This is an essential requirement to reflect and enact nursing values and codes of conduct (Nursing and Midwifery Council, 2008).Doyle, M., Jones, P. (2013). Hodges’ Health Career Model and its role and potential application in forensic mental health nursing. Journal of Psychiatric and Mental Health Nursing. 20, 7, 631-640.
This book is available as an open access pdf. Here is an extract from chapter 2 on Social Learning Theories.
Holistic approaches to learning are agnostic as to method. Drawing from connectivist and older models, they valorize diversity and the socially distributed cognition afforded by the read-write Web and other publishing models, accepting that every learning experience is unique, and every learner’s needs are different. Connectivist approaches, for all their extensive reliance on networks of people engaging socially, are at heart focused on the individual—specifically, the individual’s learning. Holistic models embrace the fact that it is sometimes more important that a group learns, rather than an individual, especially in collectivist cultures (Potgieter et al., 2006). Holistic models recognize that, sometimes, guidance is what is most needed, that people can learn without direct engagement with others and, even that transmittive instructionist models of teaching have a place. p.61.In the next post I will explain the emphasis placed in the quote.
The Lyon Declaration on Access to Information and Development
http://www.lyondeclaration.org/ was successfully launched at the World Library and Information Congress 2014 in Lyon. Since then, over 280 organisations from across the library and development community have signed the document and called upon United Nations Member States to incorporate access to information in the new post-2015 development framework. The Declaration has now been translated into 13 languages.
Following the release of the Open Working Group Outcome Document in July, IFLA is now waiting to see what UN Secretary General Ban Ki-Moon will present to the UN General Assembly later this year in New York. The Secretary General is currently overseeing preparation of a ‘synthesis report’ that will bring together the outputs of various processes on the post-2015 development agenda and help UN Member States find a way forward in negotiations over the next twelve months. The synthesis report is expected to be released at the end of October/early November.
What are the next steps?
Once the synthesis report is issued it is crucial that policymakers in the capitals of UN Member States get to hear what libraries want to see in the new framework. As outlined in the Lyon Declaration, IFLA wants the United Nations to acknowledge that access to information, and the skills to use it effectively, are required for sustainable development, and to make sure that the framework’s goals, targets and means of implementation reflects this.
Your voice will be needed for us to achieve this goal.
IFLA is currently preparing an advocacy toolkit which will help library representatives to approach decision-makers in order to talk to them about the importance of access to information in development. IFLA wants to help its members and partners to take the opportunity to position themselves inside development debates in their home countries, so that their governments recognise the value libraries bring to development. Ultimately, libraries can benefit from being included in the national plans that will implement the new development agenda from January 1st, 2016.
The advocacy toolkit will be available in early October 2014.
What can you do to help?
|Acute mental health needs|
Empowering the individual?
Let therapy commence
Remote policy touch
Organisational (distance) dementia?
metrics: Km or Miles or time?
Gallons or Litres?
Harm to others
to integrated care
Reading the website of the project (posted yesterday) I noticed that their founding ideas can be mapped to Hodges' model. As depicted below some are pretty obvious, notably the POLITICAL domain and the SOCIOLOGICAL.
Their first founding idea is placed in the interpersonal domain. This is very subjective exercise - literally playing with words - but here I am prioritizing individual cognitive access above physical access. I am thinking of individual participants. As Nanotechnologies for Development state the first idea also focuses on countries - the group. So maybe I am wrong, if there is a wrong when using models - idealisations - in this way?
Staying with the group, access and participation are also a crucial matter of human rights - education, health information, health and social care, employment, freedoms, and security - freedom from violence, unlawful imprisonment...
These founding ideas clearly denote underpinning values, note in-particular the way risks and benefits are included at the individual and the group level.
In the SCIENCES domain from the beginning acknowledges time, process, project management. Nanotechnology needs to be understood in terms of the environments we inhabit. Not just us, now; but grandchildren... too. Not just the physical environment, but that embodied under and within this other divide: skin.
Within the mechanistic domains how will consultation about benefits and risks be negotiated and communicated to the humanistic domains?
How will the individual - group : community - commercial enterprise and innovation be squared?
This individual-group distinction is becoming ever more significant - of which more to follow.
|The first founding idea of this project is that developing countries should not be denied participation in advanced modern technologies.||The third core idea is that such developments entail risks and benefits that need to be addressed from the beginning.|
|The second that they should do that in their own culturally-specific ways. Our approach rejects any a priori distinction between traditional and modern technologies, but rather seeks innovative ways to connect indigenous and globalized knowledge and practices.|
The fourth founding idea is that choices about those benefits and risks need to be made in a democratic way.
Born in Liverpool. Three children. Community Mental Health Nurse NHS, Intermediate Support Team plus Independent Scholar & Informatics Specialist
RMN, RGN, CPN(Cert.), PGCE, BA(Hons) Comp/Phil, PG(Dip)COPE.
Live and Work in Central & West Lancashire, England - working on achieving a global perspective.
Graduate Student, Lancaster University, Doctoral Programme PhD in E-Research and Technology Enhanced Learning
Publications: 1982 to date
The views expressed on W2tQ are entirely my own, unless stated otherwise. Comments are disabled. If you would like to get in touch please e-mail me at h2cmng at yahoo.co.uk
This work is licenced under a
Creative Commons Licence.