P Being mobile and active is one
H of the most important
Y factors in longevity
S and quality of life.
I A model of activity in residential
C and nursing home care should be a right.
O I often enquire about
P the possibility of residents who
O tend to become
L agitated at a certain time of
I of the day, to be taken, or assisted to
T have a walk, or at least
I feel the fresh
C air on their faces.
A This can make a real
L difference, as Nature's natural sedative.
Prompted by a question posed by Jackie Pool on LinkedIn:
Supporting individuals through activity - a positive role for carers?
Jackie's description of an everyday indoor activity being used to promote movement and mobility flags a real issue. Access to the outdoors is still very difficult for many residents on units that are located upstairs.
Residential homes should (must) have sufficient staff to facilitate a full range of activities. This month in the Northern hemisphere it is summer: outside.
In terms of taking people out, staff often look at me and I them, as together we acknowledge the constraints that frequently operate. I've walked outside with residents myself a great opportunity to assess and engage. Staff know the benefits of movement and activity. This helps us all to get out-side of our-selves. The gift it that this diversion of sun and air (and rain) can reach through confusion and agitation, even if only for a short period of time. Hence it can be acutely frustrating when this basic need can not be fulfilled. Holding on to life's essential repertoire is vital.
Hodges' Model: Welcome to the QUAD
- provides a space for reflections on a HEALTH, SOCIAL CARE and INFORMATICS model with universal potential in terms of application and users. The model incorporates two axes: individual-group and humanistic-group and four care (knowledge) domains - Sciences, Interpersonal, Political and Social. You can learn about Hodges' model here, plus items on education, global health and computing. Watch out for news about the development of a new website using Drupal.
Tuesday, June 18, 2013
Sunday, June 16, 2013
NWHealthHack began with several briefings. These were all excellent in providing both technical and health care insights before projects were pitched in 60 seconds.
Prof. Shôn Lewis set the health agenda in the context of mental health. I'm really grateful to Prof. Lewis to be able to share two slides here. The first speaks volumes not only in the research spend across health care domains but the disability-adjusted life year (DALY):
Over the past 25+ years I'm aware of the change within community mental health nursing. I can summarise this as follows:
- 1985 one of six new community psychiatric nurses - CPNs
- Early 1990s newly built community mental health resource centers
- Mid-late 1990s CPNs criticised for not meeting the needs of the enduring mentally ill
- Early 2000s early intervention services, role of psychosocial interventions
- Mid-late 2000s reduction and closure of mental health day hospitals
- Early 2010s former community mental health resource centers turned to primary care (mental health)
ClinTouch and reflections on the professional's response to the apps potential and the findings in practice. It's never easy being open to what is new and being ready as a consequence to re-invent yourself. If that's a problem for individuals then for professional groups and multidisciplinary teams it's an even greater challenge. ...
Wednesday, June 12, 2013
£150k NHS Innovation Challenge Prize for Dementia in collaboration with Janssen Healthcare Innovation
Tuesday, June 11, 2013
As well as highlighting some very useful papers, the post below c/o HIFA2015 is also an appeal as follows:
HIFA currently has only eight members in China (compared with 510 in India and 655 in Nigeria), and we would welcome more. If you have contacts with health professionals, researchers and/or policymakers in China, please invite them to join us at www.hifa2015.org
Dear HIFA members,
Fan Jiang, Jun Zhang, Xiaoming Shen. Towards evidence-based public health policy in China.
The Lancet, Volume 381, Issue 9882, Pages 1962 - 1964, 8 June 2013 doi:10.1016/S0140-6736(13)61083-1
'In China, most biomedical and even public health research stops at publication. We believe that completing a public health study is not the end of the process, but, in many cases, marks the beginning of the next phase in which research results are applied to solve real-life problems. Efforts are warranted to raise such awareness among researchers and policy makers.'[The editor of HIFA2015 also mailed the following to the list]
'A clear, streamlined system is crucial to promote evidence-based public health policy at a large scale. Several mechanisms might be useful. First, a platform for bilateral communication between researchers and policy makers is needed to improve mutual understanding and to establish an effective and efficient dialogue channel. In addition to informal public meetings and knowledge brokers, rapidly spreading social media has been shown to be a very useful means to obtain feedback.11, 12 [...] Although still early in a long journey, China is moving towards evidence-based public health policy.4 With the right knowledge, attitude, and practice, adequate investment in the capability and capacity of implementation, and an efficient system, this goal will be reached.'
A Comment in The Lancet makes an observation that is highly relevant to global health professionals, and especially those who undertake systematic reviews (which are often limited to papers in English):
'Any attempt to analyse global data needs to access work published in Chinese. This need is not straightforward to address, but the east-west collaboration of Chan and colleagues is exemplary. The western, anglophone hegemony in the generation and dissemination of research is coming to an end. This change creates challenges for peer review and synthesis of knowledge, but western investigators should no more assume that their Chinese counterparts have published high quality research in English than vice versa.'Martin J Prince. Dementia in China: east-west collaboration bears fruit. The Lancet, Volume 381, Issue 9882, Pages 1967 - 1968, 8 June 2013.
doi:10.1016/S0140-6736(13)60770-9 Cite or Link Using DOI
The full text is freely available, after free online registration.
HIFA2015 profile: Neil Pakenham-Walsh is the coordinator of the HIFA2015 campaign and co-director of the Global Healthcare Information Network
Monday, June 10, 2013
SOCIOLOGY : POLITICAL
Source: Luce, E. US data-intelligence complex emerges from shadow of 9/11, Financial Times. 8-9 June, 2013. p.6.
Sunday, June 09, 2013
|Cotard's syndrome |
Belief "I am dead" delusion (or?)
depression self suicide
"I have no brain" theory of mind conscpsychotherapy
senses - taste smell
|PET - positron emission tomography|
ICD 11 - classification?
attempts 'default network mode'
iousness body (parts) brain function
frontal and parietal lobes anaesthesia
low metabolic activity physiology
|social impact, family, friends, carers|
sense making social understanding
Jules Cotard (1840–1889), a French neurologist
quality of life autonomy control
research funding access to treatment
specialist services referral processes
Source: New Scientist, 1 June 2013.
Mindscapes: First interview with a dead man
Wikipedia: Cotard delusion
Friday, June 07, 2013
The Information Commissioner's Office (ICO) has fined Glasgow City Council £150,000 for the loss of two unencrypted laptops, one of which contained personal details about more than 20,000 people.
An ICO investigation discovered that - despite previous warnings - Glasgow City Council had provided staff with unencrypted laptops after there had been problems with encryption software. At least 74 of these laptops remain unaccounted for, with at least six of them known to have been stolen.
Thursday, June 06, 2013
My source: Peter Kurilecz - Records Management List
Information and Records Management Society
Tuesday, June 04, 2013
Part of: Memory Palace exhibition at V&A
More to follow.
Monday, June 03, 2013
In the circumstances, he could be forgiven for turning out the odd finely wrought novella. Instead, the last six years have seen seven new Keneally books – his most recent novel weighed in at 520 pages and has a serious claim to be the best he’s ever written. The Daughters of Mars, about Australian nurses in the First World War, once again pulls off the miraculous Keneally trick of being both epic and intimate. It’s also packed with great phrase-making – an aspect of his work too often overlooked.Hay Festival
Source: Sky Arts & The Telegraph
Saturday, June 01, 2013
I had high expectations for the text, also anticipating an exacting read. After all, as a 5th edition this is a well established text. The expectations were not wholly realized, however; many of the papers are quite dated being published originally in the 1990s.
The book is an important collection and can certainly be regarded as essential reading for advanced nursing practitioners and those pursuing post-graduate nursing studies. Several chapters hail from the same journal publisher and perhaps - as a positive - this contributes to the readable and accessible style throughout the book. The text format and size are also easy to read. I found one spelling mistake within the index entry for 'diagnosis' p.387. In addition to the historical development in part 1 the book's division into five parts - 31 chapters in total - acknowledges the reliance on the past and from it appears from a previous edition the arrival of the 21st century. Apart from the current date of issue 2013 I cannot accurately place the most recent additions to the volume. The contents listing and preface are limited in this respect. Judging from the references they are not that recent. 2010 is one of the most recent references I could find, and this, the 75ed of Toby & Mariner.
Many of the papers are seminal and include an overview of particular aspects of nursing thought - analysis and synthesis. Unsurprisingly, there is philosophy and ethics in great abundance, together with ecocentricism, several forms of feminism, aboriginal peoples and their world views, evidence, health, beliefs, art, professionalism, research, patterns, advanced practice, theory and much more. The distinction between evidence based theory and evidence based practice is something of which all nurse students should be aware.
There is specific reference to Advanced Nursing Practitioners. There could obviously be some variation in how this professional group are considered as opposed to Advanced Nursing Practice. Having just returned from Belfast and the University of Ulster there is ongoing currency in McCormack's chapter 17 A Conceptual Framework for Person Centered Practice with Older People. While dated 2003 McCormack's work was emphasized at a recent conference in Ulster I was able to attend (and there are plans for another). I am sure other chapters may be enlivened by such reviewer found co-incidences as this.
I wonder if the scope of the book and acknowledgement of the passing of time seems to shout for a two-volumed approach. As suggested above, the previous acknowledgement of the future seems to have hailed from the 20th century and got lost. We are now after all more than a 1/10 of the way into the 21st century.
Having started my nursing career in the RN, chapter 22 on military metaphor in nursing and the need for another. A researcher contacted me several years ago about using Hodges' model (a conceptual framework) in a study on bullying in nursing. I've never heard anything since, but Hodges' can help in such research in two respects. The inclusion of a political domain and the organization of groups of people, emphasizes process, procedure, protocol, routine, and may proceed to regimentation, discipline, hierarchy so to a degree language games will follow. As this chapter notes, several professions, including nursing are said to eat their young. A commentary after the chapter provides a useful balance and makes this point. The chapter is nonetheless a reminder of the role of language and how professionalism arises and is sustained (disciplines too?). The proposal of frontier as a new metaphor is fitting as Hodges' model identifies five conceptual fronts - frontiers that must be integrated.
As a frontier - Chapter 21 on rapture and suffering with technology in nursing holds many lessons and insights. Heidegger's "standing reserve", the human-technology interface, what it means to live like a human being and the distinction of being a human being. Mobile technology, m-health, e-health are making a huge contribution to global health and need a place here. I found Macurdy's four principles 326-327 on what patients need to assume power and control over their care very illuminating, especially in highlighting information access and the importance of health literacy.
In the text and the index I could not find specific reference to capacity, as in mental capacity, informatics, global health, information (access), justice, law, legal, management, human rights, literacy, mental, political, psych-, long-term medical conditions and recovery. While the book would become incoherent if a disease/diagnosis-based approach was adopted, we might ask: does dementia deserve specific inclusion? This is an interesting (and potentially vociferous) debate in itself - to what extent should such a book record change through several decades? Of course the book is not an encyclopedia and it is easy to critique according to omission. These are pressing times demographically, however; while there is a population focus: global communities and aboriginal communities in chapter 23 and 24, this merely scratches the surface of very large world.
This book is a valuable asset and has stimulated many ideas here (and potential blog posts). I am very pleased to have read it and would recommend it to students and practitioners alike. I am grateful to the publishers for the review copy.
Friday, May 31, 2013
e: k.a.christer at shu.ac.uk | t: +44 (0) 114 225 6918 | f: +44 (0) 114 225 6702 | www.design4health.org.uk
Thursday, May 30, 2013
Humans, Information and ScienceThis evening I went through some old directories from two PCs ago and added the two figures missing from a paper published in 1996. This is now available on Academia.edu:
I've mentioned this paper before on W2tQ. I thought I would upload a copy as the basic details seems to have prompted some interest. At some point I would like to return to this subject:
The use of information forms the basis of nursing policies, standards and professional codes of conduct. Although used intuitively, nurses must now also grapple empirically with information needs often defined by others, and with the technology used to capture and process it. Even the briefest contemplation of 'information' reveals a truly pervasive concept. Information is ubiquitous. In order to care effectively in the so-called "information age" health care professionals need to understand information. This paper is a small contribution to that effort, attempting to conjoin the disparate fields of health and the information sciences; and the basic sciences upon which they are based.
This paper explores how definitions of 'information' formulated in computing and communication theory relate to health and other aspects of human experience. The strategy adopted to achieve this is threefold. First, there is the vexed question of defining data, information and knowledge. Second, I consider how communication - that essential nursing activity - relates to information, meaning and the messages people seek to convey to each other. Thirdly, clinical situations are described in an information oriented manner, using the concepts of 'redundancy' and 'entropy'. The conclusion provides an historical perspective.
Jones, P. (1996) Humans, Information, and Science, Journal of Advanced Nursing, 24(3),591-598.
In the meantime a draft paper on Hodges' model, case formulation (conceptualization) and diagrams is at a reduced 4,000 words ready for a meeting with my co-author later in June.
Early next month I'll post a book review and crack on with other reading for reviews.
Tuesday, May 28, 2013
– Jhumpa Lahiri
My source: Fred Dervin via mailinglist at cosmobilities.net
- are four brothers – sons of the same father and four very different mothers...
One mother, an English nurse on a cross channel ferry...
The Times, Saturday Review, 25 May 2013, p.17.
Sunday, May 26, 2013
My source: MHHE list
Saturday, May 25, 2013
The Journal of Community Informatics (http://ci-journal.net)
Abstract submissions due June 15, 2013
Full papers due September 1, 2013
Anticipated publication date February 1, 2014
The international peer-reviewed Journal of Community Informatics (http://ci-journal.net/) is a medium for the communication of research of interest to a global network of academics, community informatics practitioners and national and multilateral policy makers. A special issue of the journal will be devoted to examining the relationship between Community Informatics and the Millennium Development Goals (MDGs).
Community Informatics (CI) is the study and practice of enabling communities and the grassroots to improve their lives through Information and Communications Technologies (ICTs). This special issue will focus on how community-based use of ICTs can contribute to both the achievement of specific MDG targets and the development of the post-2015 global development agenda. The issue is expected to be published in early 2014 and thus provide inputs to ongoing discussions on the finalization of a new global development agenda.
Call for papers
The field of Community Informatics seeks to explore the potential of ICTs and their applications for social and economic development at the community level. It particularly seeks to ensure that marginalized individuals and communities can benefit from the opportunities that ICTs can provide. Active and meaningful participation by people at the community/grassroots level is arguably one critical element for the successful achievement of the MDGs – and any other development priorities, for that matter. As demonstrated in different parts of the world, ICTs enable the participation of people and give voice to the voiceless.
For this special issue, we are inviting original, unpublished research, points of view, case studies, reviews and field notes. All research papers will be double-blind peer-reviewed. Insights and analytical perspectives from practitioners and policy makers in the form of notes from the field or case studies are also encouraged. These will not be peer-reviewed but will be assessed as to their suitability for publication.
Expected topics in this special issue include:
1. National and local policies needed to foster synergies between CI and the MDGs
2. Local government, CI and ICTs: how to create a sound ecosystem for development and MDG achievement?
3. Enabling communities to participate in local MDG decision making processes via ICTs
4. CI and access to information and open data related to MDG development priorities
5. CI and local participation strategies to meet MDGs
6. CI and social inclusion of groups targeted in MDGs
7. CI and local MDG related capacity development: can ICTs close or widen the gap?
8. The potential role for CI in the post-2015 global development agenda;
9. Assessing the empirical evidence on the role of community ICTs in the MDGs to date
And specifically related to individual MDG targets:
10. Using community-based ICTs to address extreme poverty and hunger
11. CI approaches to achieving universal primary education;
12. CI contributions to the promotion of gender equality and women's empowerment
13. CI influence to in the elimination of child mortality and achievement of maternal health
14. CI approaches to combating HIV/AIDS, malaria and other diseases
15. CI and environmental sustainability
16. CI as a component of national and regional health information systems
17. CI contributions to developing global MDG partnerships
Special Issue Editors:
Charles Dhewa – CEO, Knowledge Transfer Africa (Pvt) Ltd, firstname.lastname@example.org / email@example.com
Jude Genilo – Head, Media Studies and Journalism Department, University of Liberal Arts Bangladesh, firstname.lastname@example.org / email@example.com
Raul Zambrano – Cluster Leader, Senior Policy Advisor, ICTD and e-governance, UNDP, firstname.lastname@example.org
Chris Zielinski – CEO, International Alliance on Information for All, email@example.com
Special Issue Assistant
Michel Castagné – firstname.lastname@example.org
Abstracts should be sent to the Assistant email@example.com no later than June 30, 2013.
Tuesday, May 21, 2013
In addition to the archive material on the model, it is important to offer students a means to test their knowledge. This might involve a trial of several modules, including H5P:
H5P is a framework for creating HTML5 content and applications that can be easily moved between web-sites. H5P facilitates sharing and reuse of code used in rich content and applications. H5P also includes an authoring tool so that H5P content may be created and edited using a web-browser.Drupalcon Portland is now underway and I'm looking forward to tuning in live and following sessions, starting with Dries' keynote. This should begin at 7.30pm here in the UK. Drupalcon Munich seems ages ago now (4.7 even longer ..! ) and suddenly Prague is on the horizon.
Organizations and governments spend millions of dollars creating rich Internet content, games and applications. The code used may be shared here on h5p.org as libraries so that others may fill in their own content and reuse the code.
Quiz Questions Import for Drupal 7 released